Yep, that's right the stuffed animal is wearing the Pod and loving it I might add...Our Sugar Babie not so much!We started our Podding adventure last Monday and what an adventure it has been. It has been filled with many tears, pure mental and emotional exhaustion, the highest numbers we have ever seen in a year, diapers, clothes, bedsheets being soaked through morning, noon and night and a little boy who's full of life smile and laughter no longer existed for a week. What was suppose to the best moment of our lives since diagnosis was nothing but.
We got through an awful skin irritation that I was hoping he wouldn't get when we placed our first Pod on a very wiggly toddler and the extra adhesive may have been working too good to keep that sucker super glued to his precious body and I even survived replacing a Pod all by myself...barely but I did it. Did the room look like a crime scene and was my babie screaming his head off...yes, but I did what I had to do when the cannula came out and the smell of insulin lay heavy in the room and all I could think about was how long he had been without insulin and my adrenaline just kicked into overdrive to get his life support back to him.
But the ending of it all for now, was when we headed into our third Pod change and Our Sugar Babie wouldn't let us near the site. He was in so much pain and he wasn't going to let us near that Pod without a fight...and what a fight it was. It broke this mommy's heart to see her babie in that kind of pain and to see the infusion site infection once the Pod was removed. And what broke my heart even more was that my babie was no longer acting like himself and since he can't talk well enough yet for us to understand everything he says, it was hard for him to communicate all of this to us. The pump had changed him and and this mommy wanted her babie back even if that meant we had to make the difficult decision to stop the pump for now and reevaluate our plan of care.
I admit it I am a perfectionist...but diabetes and perfect don't go together. So my expectations were low going into pumping. I knew it wouldn't be perfect. We would see numbers all over the place and it would take time to get them in range. Sugar Babie would more than likely fight Pod placement like he fights shots...yes, I have heard it over and over again...he will settle down with the shots eventually and it won't take two of you to do it anymore...yeah right...they don't know my 2yr old son!
I loved the OmniPod and our trainer Nancy had become not only a member of our treatment team but our family and truly cared about our son. It was a whole new way of doing diabetes from what I was use to and the freedom was like a breath of fresh air. Not having to give shots after meals, not always having to feed insulin and those awful peaks from NPH were a thing of the past...or so I thought. Having all of those things happen, which I know can all be a normal part of the pumping journey within the first week were just too much for all us.
Our Sugar Babie's quality of life is always at the forefront of my mind and he definitely wasn't having the best quality during his first pumping experience. So, it's back to shots for now and it's not such a fight anymore...and as you can see his favorite stuffed animal is wearing the Pod with his favorite mouse to hopefully help him to be more open to Pod pumping in the future.
So we will continue to teach, learn and grow from this. We will get there...I hope...and the Pod will eventually be a part of our family again but for right now, I am feeling alone and like a total failure at this and my heart and spirit are broken because of it. Will we ever get our happy ending?
We prayed, wished and waited for this day to come when we could free ourselves from NPH but we now have to say welcome back my friend, we need you now more than ever so please stop making me crazy and cooperate for once. Please, Oh Pretty Please!
Tears...clouding my vision. I can feel your disappointment. I am so sorry. Follow your gut. You know what is right for your family. Love ya.
ReplyDeleteWhat a week! I'm so sorry. I agree with Reyna. Follow your gut. You know what is best for your Sugar Babie.
ReplyDeleteYou are NOT a failure! Don't beat yourself up. You're taking wonderful care of your little guy. it's not your fault that podding didn't go as you'd expected to go. Everything will be okay and you'll get your happy ending.
Have you considered returning to shots with Humalog/Novalog/Apidra and Lantus instead of NPH? It might be a happy medium for you. Just a thought..
Thank YOU for your nice comment on my blog. :)
ReplyDeleteOkay, so if he didn't do well with Lantus, perhaps try Levemir??? Just another thought...I feel badly for you and figured I'd throw the idea out there. Regardless of whether you stick with NPH or switch, you'll get through this, and Sugar Babie will grow happily and healthily despite this blasted disease. :)
UGH! I am so sorry!! Has anyone told you about Emla cream? If you decide to try pumping again... ask for it. It numbs the area so he wont feel it. You could change the pods at night and he probably wouldn't even wake up. Hallie at the Princess and the Pump does that.
ReplyDeleteWhatever you decide, it will be what is best for your little guy. Hang in there!!
My 2 yr old daughter was dxd 2 months ago. We use Levemir and Novolog. We are doing ok with the shots but I really want to get her on a pump. I'm so afraid a pump might not work as well. I'm afraid to give up the 24hr Levimir and get high numbers again or maybe more lows but I have to try. All we can do is try our best if that doesn't work adjust, adjust & adjust.
ReplyDeleteDon't you dare feel like a failure! Every step you take, you are doi g your very best. There was no way to know how it would go. The fact that you aren't pushing the pump shows how fantastic you are! I'm sorry you've had a rough time. There are things you can use to prevent that rash..we have to use them.
ReplyDeleteKeep your chin up. You are a great d-mom!
I am so sorry that pumping did not go well. I totally get how hard it is to hold down your baby and give them a shot... I had all sorts of wrestling moves I had to use on Elise. Babies and diabetes just plain SUCKS, but you are doing an awesome job, you need to remember that.
ReplyDeleteI wish I had some magic wand I could wave to make it easy for you... your post takes me back to the days when I seriously didn't know if I could make it through another day. Just know that you are not alone, and if you ever need to talk, I'm here for you!
take your time and try the pod again a little down the line. we all feel like failures when dealing with D, but try not to dwell on it and move on. tomorrow is a chance for a new start. hang in there.
ReplyDeleteOh, my friend. I feel your pain. When we transitioned to the pump, I had a REALLY hard time. I seriously feel like something changed deep inside my soul during that time. Like suddenly I realized how HORRIBLE this disease could be :( We fought highs for weeks, until I finally found an infusion set that worked. It was a very difficult time for both of us.
ReplyDeleteYou know your baby best. If putting the pump aside for now is what's best for your baby, then do it and don't look back.
You're a great Mama. Don't let the pod get inside your brain and suggest otherwise!